News

News 2016-11-07T21:10:00+00:00

CDC Hemophilia Surveillance

Do you have a bleeding disorder and receive care at a U.S. Hemophilia Treatment Center?

If the answer is yes, have you heard of Community Counts? Been wondering what all the buzz is about and how you can take part? Well, we have just the tool to help answer these questions and others you may have!

Download our informational brochure for patients entitled “How you can benefit from participating in Community Counts Registry for Bleeding Disorders Surveillance” and share this resource with others in the bleeding disorders community. This brochure (also available in Spanish) describes the benefits of participating in the registry and answers the following questions:

  • What is Community Counts?
  • How is the Community Counts Program structured?
  • What are the three components of Community Counts intended to do? What information is gathered and tracked?
  • Is participation in the registry voluntary?
  • If I enroll in the registry, what am I agreeing to do exactly?
  • Why is it important to participate in Community Counts?
  • Who can participate?
  • What information is collected from me?
  • What should I expect if I choose to participate in the registry? What happens next?

If you still have unanswered questions after reading the information contained in this brochure, please visit http://www.cdc.gov/communitycounts/.


¿Tiene un trastorno de la sangre y recibe atención en un centro de tratamiento para la hemofilia en los Estados Unidos?

Si la respuesta es sí, ¿ha oído del programa La Comunidad Cuenta? ¿Se ha preguntado de qué se trata y cómo puede participar? ¡Tenemos la herramienta apropiada para ayudar a responder estas preguntas y otras más que usted pueda tener!

Descargue nuestro folleto informativo para los pacientes titulado “Cómo beneficiarse al participar en el Registro de La Comunidad Cuenta para la Vigilancia de Trastornos Hemorrágicos” y comparta este recurso con quienes pertenezcan a la comunidad de las personas con trastornos de la sangre. Este folleto (también disponible en inglés) describe los beneficios de participar en el registro y responde las siguientes preguntas:

  • ¿Qué es el programa La Comunidad Cuenta (Community Counts)?
  • ¿Cómo está estructurado el programa La Comunidad Cuenta?
  • ¿Cuál es el fin de los tres componentes de La Comunidad Cuenta?  ¿Qué información se reúne y se monitorea?
  • ¿Es voluntaria la participación en el registro?
  • Si me inscribo en el registro, ¿qué exactamente estoy aceptando hacer?
  • ¿Por qué es importante participar en La Comunidad Cuenta?
  • ¿Quién puede participar?
  • ¿Qué información sobre mí se recogerá?
  • ¿Qué debo esperar si elijo participar en el registro? ¿Qué pasará a continuación?

Si todavía tiene preguntas sin contestar después de haber leído la información de este folleto, por favor visite  http://www.cdc.gov/communitycounts/.

May 17th, 2017|

National Drug Take Back Day 2017

Saturday, April 29, 2017
10:00 am – 2:00 pm

nquiries can also be made at 1-800-882-9539

The National Prescription Drug Take Back Day aims to provide a safe, convenient, and responsible means of disposing of prescription drugs, while also educating the general public about the potential for abuse and medications.

April 25th, 2017|

Innovation Belongs In Every Moment

“Innovation Belongs In Every Moment” is this year’s theme at the Regional Annual Conference.

In partnership with the Hemophilia and Thrombosis Treatment Center at Rady Children’s Hospital in San Diego, CIBD co-hosted the 2017 Annual Conference of the Western States Regional Hemophilia Treatment Centers (HTC). Beginning on April 2nd, the two-day conference was held at the Catamaran Resort and Spa and hosted over 200 attendees. Our theme was “Innovation…belongs in every moment.”

The conference brought together clinical and non-clinical staff and supports HTC’s in expanding their professional networks, build clinical skills, and obtain updates on best practices. Attendees represented 14 HTC’s, community based organizations, community clinicians, and industry partners from California, Nevada, Hawaii, and Guam.

To learn more about the work done in our region you can go to: Western States Region IX Network.

If you are interested in learning more about HTC’s and their origin, check out our video on YouTube, entitled, “Blood Roots – Hemophilia Treatment Centers,” produced by the Federal Hemophilia Treatment Centers in Region IX, the University of Colorado Denver|Anschutz Medical Campus, and Oregon Health and Science University:

April 6th, 2017|

Happy Doctor’s Day!


March 30 is National Doctor’s Day, a time set aside to honor those in the medical profession.

It’s easy to forget just how important, valuable and necessary good doctors are – that is, until you get ill or sustain an injury. CIBD would like to highlight our hard-working doctors, and recognize the long hours they work, their compassion, and the effort they put into taking care of our patients.


CIBD DOCTORS

Diane Nugent, MD
President and Founder
Medical Director

Amit Soni, MD
Associate Medical Director

Nina Hwang, MD
Pediatric Hematologist

Susan Claster, MD
Adult Hematologist

David Buchbinder, MD
Pediatric Hematology

Loan Hsieh, MD
Pediatric Hematology

Arash Mahajerin, MD
Pediatric Hematology

Geetha Putheveetil, MD
Pediatric Hematology

March 30th, 2017|

The Painted Turtle 2017

Founded in 1999 by Paul Newman and Page Adler, along with a group of individuals. The Painted Turtle opened in 2004 providing camp programs all year round. In 2007, furthered their service by establishing an Outreach Program called The Painted Turtle Outpost. This program brings the fun filled joy of camp to children in hospitals and community events.

The Painted Turtle serves children in California with chronic and life-threatening illnesses. For those who qualify, The Painted Turtle provides these children and their families a camping experience free of charge. To learn more about The Painted Turtle and how to apply, please use the links below or go to thepaintedturtle.org .

Brochure – English

Brochure – Spanish

2017 – Calendar

The Painted Turtle Info Poster

 

March 27th, 2017|