CIBD Clinic presenting Different Types of IV Access For Patients With Bleeding Disorders.
CIBD Clinic is a safety-net clinic for patients with inherited and rare bleeding disorders. Our thoughts are always “patients first” and how best to care for our patients. With this mentality, our team of CIBD Pharmacy and CIBD Clinic, comes together to learn about the different IV access for our patients and what is provided to our patients through CIBD 340B Pharmacy and those enrolled in CIBD Pharmacy Home Care.
CIBD Pharmacy staff are responsible for the infusion supplies that our patients need. These infusion supplies are conveniently delivered through our Home Care program. To stay up-to-date and understand fully the needs of our patients, CIBD Clinic put together a presentation to address concerns and to answer questions our non-clinic staff members may have. The CIBD Pharmacy staff was concerned they may under supply items patients may need most or supply unnecessary items.
CIBD Clinic and CIBD Pharmacy are proud that our team learns from each other and keeps the lines of communication open. This is one way we can continue to best serve our patients who live with bleeding disorders.
CIBD Scholarship Application Accepted NOW!
Starting March 6th through May 31st, CIBD patients will have an opportunity to apply for a scholarship towards their education. Four $500 scholarships are available and CIBD patients can apply by mail or online. CLICK HERE for application.
- Must be planning on attending or currently attend an accredited technical school, college or university.
- Must be a person diagnosed with a blood disorder and being treated at CIBD.
- Must have a grade point average (GPA) of 2.5 of a 4.0 scale, or higher during current year of education. Scholarship recipients may be asked to submit transcripts and evidence of enrollment.
- One essay on your goals and aspirations, and how the blood disorder community has played a part in your life (one page minimum).
- Previous scholarship recipients are eligible to reapply for a total of 3 academic years.
IMMIGRATION RIGHTS WEBINAR
with Jennifer Lee Koh, Esq. & Sabrina Rivera, Esq.
Western State Law School Immigration Clinic
Friday, March 17, 2017 (English) 1:00pm & Tuesday, March 21, 2017 (Spanish) 7:00pm
• Legal rights if Immigration (ICE) comes to your home? Work? Church?
• What to do if you are detained?
• I have a bleeding disorder; can I be deported?
• Family preparation in case of family separation
• Steps to Take now
• Opportunity to ask questions
To sign up, please register here:
English – Friday, March 17, 2017, 1:00PM PDT:
Spanish – Tuesday, March 21, 2017, 7:00PM PDT:
Thank You for Your Support!
The HFSC Staff
As part of our support for a healthy living lifestyles, CIBD is offering cooking classes to patients with bleeding disorders. Our first class is being held on March 21st and March 28th at the Discovery Science Foundation and Discovery Cube in Orange County. Classes begins at 5:30PM and ends at 7:30PM. The classes are open to patients of CIBD Clinic living with hemophilia and Von Willebrand Disease (vWD). Please RSVP by March 15th. Details and restrictions below.
March 15th, 2017
Spencer Dunn @ SDunn@c3dibd.org or call 714-221-1202
CIBD patients living with hemophilia and vWD
Guests 7 years of age and younger have a parent or legal guardian cook with them.
In order to have an energetic healthy living lifestyle, we have to eat healthy. The food we put into our bodies can affect how we feel physically and mentally. For individuals with hemophilia and other bleeding disorders, eating healthy is especially important to help protect their joints. It is key to eat meals that include a healthy balance of fruits, vegetables, grains and dairy.
Source: http://www.hemophiliafed.org/programs/blood-sisterhood/bsis-health-nutrition/ Accessed on March 7, 2017
On March 25th, CIBD patients will have the opportunity to participate in a variety of research studies that are designed to help patients and families gain a deeper understanding of hemophilia, increase knowledge of inhibitors, and contribute to advancing the breakthrough of treatments. The studies that we will be available are My Life Our Future (MLOF), CDC Community Counts Registry, and HUGS.
My Life Our Future (MLOF) offers free genetic testing or Genotyping. This process involves a simple My Life Our Future (MLOF) offers free genetic testing or Genotyping. This process involves a simple blood test of any person with Hemophilia A or B and/or a female who is related to any patient with confirmed Hemophilia A or B. This study will help hemophilia patients and family members understand their Hemophilia genetic makeup. This may be helpful for family planning. Furthermore, it will help the research community understand the genetics of hemophilia.
The Center for Disease Control (CDC) runs a community counts registry that is collected by answering a 5-10 minute questionnaire along with blood test. The primary focus of this registry is to improve quality of life for people living with bleeding disorders.
Hemophilia Utilization Group Studies Park VI (HUGS): An Adherence Study Among Participants with Hemophilia is an observational study that involves four questionnaires over a period of nine months. This will help determine a patients’ treatment patterns, bleeding related issues, physical activity, health status and adherence to factor replacement therapy.