KEY FINDINGS: New Method to Detect the Type of Antibodies Linked to Inhibitors Development Among People with Hemophilia A and B
In an article release by the CDC (Center for Disease Control and Prevention), research reports key findings related to the formation of inhibitors (antibodies) in patients who have hemophilia. The study shows that hemophilia A and hemophilia B patients who develop inhibitors are likely to have a specific type of antibody called immunoglobulin G subclass 4, or IgG4. In the event that traditional inhibitor tests do not provide clear results, testing for these antibodies instead may help clarify whether an inhibitor is present.
Inhibitors are antibodies (protein) that prevents or stops infused factor from working. For those with bleeding disorders like hemophilia A and hemophilia B, inhibitors often develop because the body’s immune system identifies the clotting factor as foreign. A blood test called Nijmegen-Bethesda Assay (NBA) is used to diagnose inhibitors.
For some cases, NBA can produce an unclear result as to whether a patient has an inhibitor or not. The CDC researchers have addressed this problem by developing a complementary test. A new method called fluorescence immunoassay (FLI). Blood samples from patients with hemophilia A were use to detect antibodies for factor VIII. As well as blood samples from patient with hemophilia B to detect antibodies for factor IX.
For the complete article: CLICK HERE
CIBD Clinic presenting Different Types of IV Access For Patients With Bleeding Disorders.
CIBD Clinic is a safety-net clinic for patients with inherited and rare bleeding disorders. Our thoughts are always “patients first” and how best to care for our patients. With this mentality, our team of CIBD Pharmacy and CIBD Clinic, comes together to learn about the different IV access for our patients and what is provided to our patients through CIBD 340B Pharmacy and those enrolled in CIBD Pharmacy Home Care.
CIBD Pharmacy staff are responsible for the infusion supplies that our patients need. These infusion supplies are conveniently delivered through our Home Care program. To stay up-to-date and understand fully the needs of our patients, CIBD Clinic put together a presentation to address concerns and to answer questions our non-clinic staff members may have. The CIBD Pharmacy staff was concerned they may under supply items patients may need most or supply unnecessary items.
CIBD Clinic and CIBD Pharmacy are proud that our team learns from each other and keeps the lines of communication open. This is one way we can continue to best serve our patients who live with bleeding disorders.
CIBD Scholarship Application Accepted NOW!
Starting March 6th through May 31st, CIBD patients will have an opportunity to apply for a scholarship towards their education. Four $500 scholarships are available and CIBD patients can apply by mail or online. CLICK HERE for application.
- Must be planning on attending or currently attend an accredited technical school, college or university.
- Must be a person diagnosed with a blood disorder and being treated at CIBD.
- Must have a grade point average (GPA) of 2.5 of a 4.0 scale, or higher during current year of education. Scholarship recipients may be asked to submit transcripts and evidence of enrollment.
- One essay on your goals and aspirations, and how the blood disorder community has played a part in your life (one page minimum).
- Previous scholarship recipients are eligible to reapply for a total of 3 academic years.
IMMIGRATION RIGHTS WEBINAR
with Jennifer Lee Koh, Esq. & Sabrina Rivera, Esq.
Western State Law School Immigration Clinic
Friday, March 17, 2017 (English) 1:00pm & Tuesday, March 21, 2017 (Spanish) 7:00pm
• Legal rights if Immigration (ICE) comes to your home? Work? Church?
• What to do if you are detained?
• I have a bleeding disorder; can I be deported?
• Family preparation in case of family separation
• Steps to Take now
• Opportunity to ask questions
To sign up, please register here:
English – Friday, March 17, 2017, 1:00PM PDT:
Spanish – Tuesday, March 21, 2017, 7:00PM PDT:
Thank You for Your Support!
The HFSC Staff
As part of our support for a healthy living lifestyles, CIBD is offering cooking classes to patients with bleeding disorders. Our first class is being held on March 21st and March 28th at the Discovery Science Foundation and Discovery Cube in Orange County. Classes begins at 5:30PM and ends at 7:30PM. The classes are open to patients of CIBD Clinic living with hemophilia and Von Willebrand Disease (vWD). Please RSVP by March 15th. Details and restrictions below.
March 15th, 2017
Spencer Dunn @ SDunn@c3dibd.org or call 714-221-1202
CIBD patients living with hemophilia and vWD
Guests 7 years of age and younger have a parent or legal guardian cook with them.
In order to have an energetic healthy living lifestyle, we have to eat healthy. The food we put into our bodies can affect how we feel physically and mentally. For individuals with hemophilia and other bleeding disorders, eating healthy is especially important to help protect their joints. It is key to eat meals that include a healthy balance of fruits, vegetables, grains and dairy.