Western States Region Network Comprehensive Care 2016-11-07T21:10:03+00:00

Western States Region IX Comprehensive Care

  • Hemophilia is a rare chronic disease that can have many physical complications, as well as significant emotional, social and financial consequences.
  • A family-centered, multidisciplinary treatment approach is essential. Comprehensive care teams typically include hematologists, orthopedists, nurses, social workers, genetic counselors, physical therapists and dentists.
  • For HIV and hepatitis, other disciplines are consulted, including infectious diseases, immunology, gastroenterology, health education, psychology and psychiatry.
  • Comprehensive care has preventive, diagnostic, and rehabilitative components. To promote a normal life and normal life span, it should begin at birth and last a lifetime.

For more information, visit the Centers for Disease Control and Prevention Specialized Health Care website.

Services Offered at a Comprehensive Hemophilia Treatment Center

  • Specialized coagulation laboratories
  • Blood borne virus testing.
  • Genetic testing and counseling.
  • Clinical care provided by hematologists, nurse coordinators, social workers and physical therapists.
  • Coordinated case management with primary care physicians, community providers and other specialists.
  • Home Therapy: education to recognize internal bleeds, infusion training and monitoring.
  • Factor use monitoring.
  • Regular comprehensive check-ups and ongoing risk screening.
  • Immunization against blood borne viruses.
  • Hematologist available 24 hours/day, 7 days/week for emergency consultations.
  • Orthopedic care: joint assessment, exercise programs, surgery, and rehabilitation.
  • Psycho-social assessment, counseling, and case management.
  • Outpatient and inpatient clinical care and phone consultation.
  • Consultation with schools and worksites.
  • Outreach to under served areas and populations.
  • Clinical trials to find new therapies.
  • Studies to monitor outcomes and complications of bleeding disorders.
  • Collaboration with local consumer organizations and the National Hemophilia Foundation.
  • Patient and community education on state-of-the-art practices.
  • Expert testimony to State and Federal Health Agencies.
  • Financial counseling and advocacy with insurance payers.