Hemophilia is a rare chronic disease that can have many physical complications, as well as significant emotional, social and financial consequences.
A family-centered, multidisciplinary treatment approach is essential. Comprehensive care teams typically include hematologists, orthopedists, nurses, social workers, genetic counselors, physical therapists and dentists.
For HIV and hepatitis, other disciplines are consulted, including infectious diseases, immunology, gastroenterology, health education, psychology and psychiatry.
Comprehensive care has preventive, diagnostic, and rehabilitative components. To promote a normal life and normal life span, it should begin at birth and last a lifetime.