Publications 2016-11-07T21:10:00+00:00

Publications

Innovation Belongs In Every Moment

“Innovation Belongs In Every Moment” is this year’s theme at the Regional Annual Conference.

In partnership with the Hemophilia and Thrombosis Treatment Center at Rady Children’s Hospital in San Diego, CIBD co-hosted the 2017 Annual Conference of the Western States Regional Hemophilia Treatment Centers (HTC). Beginning on April 2nd, the two-day conference was held at the Catamaran Resort and Spa and hosted over 200 attendees. Our theme was “Innovation…belongs in every moment.”

The conference brought together clinical and non-clinical staff and supports HTC’s in expanding their professional networks, build clinical skills, and obtain updates on best practices. Attendees represented 14 HTC’s, community based organizations, community clinicians, and industry partners from California, Nevada, Hawaii, and Guam.

To learn more about the work done in our region you can go to: Western States Region IX Network.

If you are interested in learning more about HTC’s and their origin, check out our video on YouTube, entitled, “Blood Roots – Hemophilia Treatment Centers,” produced by the Federal Hemophilia Treatment Centers in Region IX, the University of Colorado Denver|Anschutz Medical Campus, and Oregon Health and Science University:

April 6th, 2017|

When cracking down on opioids means tougher access for sickle cell patients

Tablets, caplets, and capsules

Excerpt from http://news.stlpublicradio.org:
“Many people with sickle cell disease will die prematurely, but treatment is improving. Doctors believe that the pain of a sickle cell crisis comes from the patient’s crescent-shaped red blood cells building up in the veins and cutting off oxygen to tissue and bones. If it persists, the lack of oxygen can damage vital organs. During a crisis, powerful painkillers are often the only relief.

But opioid-based medications are also highly addictive and have come under increased scrutiny as the rate of overdoses rises among the general public. In the emergency room, doctors frequently worry that the person in front of them is one of the estimated 1.9 million Americans who are addicted to pain pills, or one of the 19,000 or so who will die each year from an overdose, according to the American Society of Addiction Medicine.

At the same time, St. Louisans living with sickle cell disease report extended wait times in emergency rooms, difficulty filling prescriptions and accusations of “drug seeking” — faking their pain to get additional narcotics.”

CLICK HERE FOR FULL ARTICLE

September 2nd, 2016|

NMI continues to support children with special healthcare needs

Kudos to our wonderful Northern Marianas Islands Bleeding Disorders Team Dr. Tiffany Lin, Physical Therapist Pam Carhill, and Social Worker Assistant Susan Satur and their great supporters for conducting 2nd successful Family Camp April 2016. Education and family networking were the foci.

Participants were also invited to complete the national patient needs assessment, data analysis is underway.  Results will help us document the impact of the Bleeding Disorders Team’s services and guide planning to continue to meet patient/family needs.

[READ FULL STORY HERE…]

Sincerely,

Judith R. Baker, DPH

Public Health Director, Western States Regional Hemophilia Network and Policy Director, Pacific Sickle Cell Regional Collaborative

Center for Inherited Blood Disorders; Adjunct Assistant Professor, UCLA Division of Pediatric Hematology/Oncology

May 13th, 2016|