Congratulations to the Adult Sickle Cell Clinic at the MLK Jr. Outpatient Center in Los Angeles for its 2017 Achievement Award from the National Association of Counties (NACo) for the project titled “A Novel Approach to Sickle Cell Disease Closes the Healthcare Gap for Adults in South Los Angeles” in the category of Health. This entry has been seen selected as one of the 100 Brilliant Ideas at Work, as part of the NACo President Bryan Desloge’s presidential initiative.
The Pacific Sickle Cell Regional Collaborative (PSCRC) leadership team co-developed the new MLK Jr. Adult SC Clinic which opened its doers in Fall 2016 Dr. Ellen Rothman, MD, Chief Medical Officer at MLK Jr. Outpatient Center is leading the collaboration at MLK.
In California, 51% of adult patients with sickle cell disease (SCD) live in Los Angeles County, which lacked an adult SCD clinic for many years. As a result, the U.S. Health Resources and Services Administration’s Sickle Cell Disease Treatment Demonstration Program (SCDTDP) decided to address this gap in care. PSCRC, one of SCDTDP’s four regional grantee teams was eager to build healthcare services for adults with SCD in LA County’s public health system. The decision was to open a comprehensive sickle cell clinic.
“We are constantly modifying our services to match the community’s needs,” says Dr. Rothman.
Pediatric patients with SCD more typically receive evidence based care from knowledgeable providers as pediatric hematologists devote their careers to sickle cell disease. However, the severe shortage adult hematologists devoted to this devastating blood disorder results finds older teens and adults without access to the same high quality of comprehensive care they received in childhood. While new treatments are helping youngsters with SCD live into adulthood, they too often face devastating and often preventable complications because too few clinicians are knowledgeable about their care.
Along with Rothman, Center for Inherited Blood Disorders (CIBD) and PSCRC Leaders Susan Claster, MD, Adult Hematologist; Judith Baker, DrPH, CIBD Public Health/Policy Director for PSCRC; and Mary Brown, President and CEO of the Sickle Cell Disease Foundation of California, have worked intensively to open the MLK Jr. Adult SC Clinic with a mission statement of “The Care You’ve Always Wanted.” For more information, or to make an appointment: www.scdfc.org/scd-clinic-at-mlk.html, (424) 338-2801, firstname.lastname@example.org