Western States Region IX Network History
In 1975, through advocacy efforts led by hemophilia treaters and parents affiliated with the consumer advocacy organization, the National Hemophilia Foundation (NHF), and based on the experience of early novel multidisciplinary approaches in Britain and California, Congress provided support to fund 26 comprehensive hemophilia specialty clinics through Health, Education, and Welfare, now the US Department of Health and Human Service Maternal and Child Health Bureau (MCHB).
Early studies verified that HTC-based care drastically reduced many hemophilia-related physical and economic consequences, including days hospitalized, number of hospital visits, average length of hospital stay, out-of-pocket expenses, unemployment, and overall costs.
- Biggs R, Macfarlane RG. Treatment of Haemophilia and Other Coagulation Disorders. Oxford, UK: Blackwell Scientific; 1966.
- Kasper CK. A total program for the patient with hemophilia. J Am Phys Ther Assoc. 1996;46:1268-1285.
- PL 9463: The Public Health Service Act Establishing the Hemophilia Diagnostic and Treatment Center Program. N0.1131 of Public Law 9463. Washington, DC: Government Printing Office; 1975.