Women's Health & Bleeding Disorders
Understanding Bleeding Disorders in Women
Bleeding disorders can affect women and girls throughout every stage of life, from the first menstrual period through pregnancy, childbirth, and menopause. While many symptoms are similar to those experienced by men, women can also face unique bleeding challenges related to menstrual and reproductive health.
Common signs of a bleeding disorder may include heavy or prolonged menstrual bleeding, excessive bleeding after childbirth, heavy bleeding after surgery or dental procedures, prolonged bleeding from cuts, frequent nosebleeds, or easy bruising. Recognizing these symptoms is an important step toward receiving the right diagnosis and care.
The most common inherited bleeding disorder affecting women is von Willebrand disease (VWD), but women and girls can also have hemophilia, platelet disorders, and other inherited bleeding conditions.
Specialized Women’s Health Care at CIBD
Our women’s health clinics support patients with bleeding disorders, sickle cell disease, mast cell activation syndrome (MCAS), and others experiencing menstrual or reproductive health concerns, even if they have not yet received an underlying diagnosis.
SWAG+ (Space for Women & Girls + People Who Menstruate)
SWAG+ provides a safe, supportive space for adolescents and individuals under the age of 26 who menstruate to discuss menstrual health and bleeding symptoms. Patients receive multidisciplinary care from a hematologist and an adolescent medicine provider through our collaboration with CHOC Adolescent Medicine.
GEMM (Gynecology Evaluation for Menses & Maternity)
GEMM provides specialized care for adult women, age 26 or older, navigating complex menstrual and reproductive health concerns, including pregnancy planning and gynecologic care. Through our partnership with UCI OB/GYN, patients receive coordinated, multidisciplinary care tailored to their individual needs.
Frequently Asked Questions
Can women have hemophilia?
Yes. Women and girls can have hemophilia and other bleeding disorders. While women were historically considered only “carriers,” we now know they can experience significant bleeding symptoms and benefit from specialized care.
What is considered a heavy period?
A period may be considered heavy if it lasts longer than seven days, requires changing pads or tampons very frequently, causes anemia, includes large blood clots, or interferes with daily activities. If you’re unsure whether your bleeding is normal, it’s worth talking with your healthcare provider.
Do I need a diagnosis before coming to CIBD?
No. Many patients come to us because they are experiencing symptoms but have not yet received a diagnosis. Our team can help evaluate your symptoms and determine whether additional testing or specialized care is appropriate.
Women’s Health Resources & Featured Articles
Wondering if your bleeding is normal?
The Self-BAT (Self-Bleeding Assessment Tool) is a free, evidence-based questionnaire designed to help identify bleeding symptoms that may warrant further evaluation. While it does not provide a diagnosis, it can be a helpful starting point for conversations with your healthcare provider.
Delayed Diagnosis in Women with Bleeding Disorders: Why It Happens and How to Get the Care You Need
Learn why bleeding disorders in women are often overlooked, common symptoms to watch for, and how earlier recognition can lead to better care.
Finding Her Voice: Ashley’s Journey Living with a Bleeding Disorder
Read Ashley’s story of navigating life with a bleeding disorder, finding her voice, and advocating for herself and others.
Foundation for Women & Girls+ with Blood Disorders (FWGBD)
The Foundation for Women & Girls+ with Blood Disorders (FWGBD) is a leading nonprofit organization focused on educating healthcare providers about the diagnosis and care of blood disorders in women and girls. Their website also offers educational resources that can help patients and families learn more about bleeding disorders, reproductive health, and advances in women’s care.