Research & Special Projects

About the Team:

Our Research and Special Projects department is dedicated to advancing understanding and treatment of inherited blood disorders.

Through clinical trials, investigator-initiated studies, public health research, and collaborative projects, we translate scientific discovery into better care for patients and families.

Study Types

Investigational Drug Trials - Testing new therapies to expand treatment options.
Investigator-Initiated Studies - Designing and leading studies that address key questions in the field.
Registries - Collecting long-term patient data to identify trends and inform treatment strategies.
Survey Studies - Gathering insights directly from patients, families, and providers.
Chart Reviews - Examining medical records to improve care delivery and outcomes.
Public Health Surveillance - Monitoring disease patterns to guide interventions and policy.

Study Materials

Hemophilia

Sickle Cell

Sickle Cell Disease GRNDaD Patient Materia l

Registries

Collaboration & Partnerships

Collaboration is key to advancing research. We work with hospitals, universities, and research networks to strengthen study design, increase patient access, and share expertise. Together, we extend the impact of our research beyond CIBD.